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Nicole · Joined: 25 Oct 2007 Posts: 19 Location: Gulfport, MS

florinef twice a day for POTS
Midodrine 3 times a day for POTS
Flecainide 2 times a day for Atrial Tachycardia
Ambien for sleep
Lyrica for fibromalgia and migraines
Potassium for low potassium
magnesium for low magnesium
cymbalta for POTS and depression
veramist for allergies
reglan four times a day for gastroparesis, gerd, intestinal dysmotility
senekot 4 times a day for constipation
lortab as needed for breakthrough migraines

I just want to see how my meds compare to other potsies. It almost gets confusing because there are so many!!!! Confused

_________________
*Nicole*
POTS, SVT,atrial tachycardia, chronic fatigue, insomnia, NCS, low potassium, lower esophageal rings, IBS, gastroparesis, insomnia, fibromyalgia, and others

Have a blessed and wonderful day!!!! HUGS and LOVE

sarah smile · Joined: 25 Oct 2007 Posts: 33 Location: Greenwood, SC

florinef twice a day
potassium pills for lowered potassium (fyi, that can be a side effect of florinef)
vicodin when needed for pain
iron pills for anemia
prevacid twice a day for GERD
neurotin for migraines
ibuprofen for pain or swelling
detripan twice a day for bladder
flexarell for muscle pain up to 3 times a day if needed
midodrine when i am able to take it... i don't always take it because you aren't suppose to lay down for at least 4 hours after taking it as that could result in too high of a blood pressure
phenogren for nausea and it helps with migraines
demoral for pain

i might be forgetting something but i hope not!

i also take the multivitamin women's one a day
i have also started drinking noni and i will let you all know how that goes.

here is a link that you can check that out at: http://www.tahitiannoni.com/unite...s/english/retail/index.html?r=400

gatorade and salt... no those aren't exactly meds but they help and i couldn't do anything without them!!!
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POTS, NCS, IBS, GERD, hiatal hernia, erosion of esophagus, inflammation of the intestines, possible GP, anemia, hypovolemia, refractive error hypermetropia, multiple sleep disorders, bladder dysfunction, and others...

whitneypaige · Posted: Mon Dec 10, 2007 2:47 am Post subject: medications

ProAmatine twice a day to up my blood pressure

Florinef twice a day supposed to help keep your blood pressure normal and keep water and salt in your body as well as break down carbohydrates.

Sinemet 25/100{Levodopa} 2 - 3 times a day normally this is only used for parkinson's disease patients but as my doctor learned @ a dysautonomia seminar, this can help with non-epileptic seizures. it helps with the convulsions, shakiness, stiffness, movement, and a lot of other things! i was having seizures numerous times a day and now i only have them every once in a while. it has been the only thing to help my non-epileptic seizures so far!

Cymbalta daily for migraines and depression

Corgard twice a day helps prevent chest pain *angina* and unfortunately this can lower blood pressure but it helps with my chest pains...we actually upped the dosage recently. but i faint so much anyway, it totally doesn't even phase me anymore. Razz

but it really helps my chest pains most of the time.

Tramadol twice a day to help ease severe pain

Potassium Supplement daily i don't have enough potassium in my body so i have to take supplements.

Klonopin for insomnia

Vivactil daily used for increasing energy levels, decrease anxiety and tension, and helps with depression.

Prevacid daily for my acid reflux

Stool softeners twice or more a day supposed to help me poop but doesn't really work for me... Embarassed

AllBee w/C Vitamin twice a day for energy

Fish Oil 1000mg 3 times a day my dr. recommends everyone to take fish oil supplements. it's great for your joints and movement. i can tell it's helps my joints a lot. Wink

i also take salt supplements when i need to, drink tons of gatorade, V8 medley (because i can't handle just plain V8s Razz

), and lots of salty soups like chicken noodle soup. Smile

_________________
Whitney Paige

Dysautonomia, Mitral Valve Prolapse, SVT, Fibromyalgia, Non-Epileptic Seizures, Acid Reflux Disease, Chronic Constipation, Insomnia, Sleep Paralysis, and much more!

sleepingbeauty · Joined: 26 Oct 2007 Posts: 8 Location: Pennsyvania

im On

Betaxol--this is to help control my HR and BP..

Clonidine (oral)-also for BP and HR.. but im also on it to help control adrenaline surges..

Protonix's- for acid reflux

Levsin- to control diarrhea.. and GUT/bladder spasms

Rhinocart nasal spray-allergies

mestinon- to treat pots

AS needed drugs

ambien cr--for sleepless nights
tylenol arthritus- for pain since im allergic to the god pain meds!
tigan-nausea
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Sleeping Beauty 25
pots-chiari malformation-sleep paralysis-to name a few disorders.....

"I'm getting really good at making Lemonade!!!"

Nicole · Joined: 25 Oct 2007 Posts: 19 Location: Gulfport, MS

yeah, the laxative stuff doesn't work at all for me either. I take 4 a day without results!!!! Embarassed

I started taking fish oil supplements too. I haven't noticed anything different though.

Okay so I don't feel like I am the only one with their own pharmacy at their house now. Smile

_________________
*Nicole*
POTS, SVT,atrial tachycardia, chronic fatigue, insomnia, NCS, low potassium, lower esophageal rings, IBS, gastroparesis, insomnia, fibromyalgia, and others

Have a blessed and wonderful day!!!! HUGS and LOVE

Guest · Posted: Wed Dec 12, 2007 8:22 am Post subject:

I take:

Florinef (just started this week, so don't know if it's helping)
Sodium Tabs
Coreg CR
Phenergan
Provigil
Klonopin (for anxiety)
vicodin (for joints-EDS)
morphine (for joints-EDS) I am not able to walk, use a wheelchair)
carisoprodal (muscle spasms)
Lexapro (depression)

My list may not be as long, but sure more embarrassing Embarassed

whitneypaige · Posted: Wed Dec 12, 2007 3:17 pm Post subject:

I've been on a lot of those meds. They just didn't work for me. I've been on the Provigil, Lexapro, and a bunch of others on your list and more.....don't be embarrassed. I have to use a wheelchair, too. Not everyday but I know how it feels. I've finally gotten over how some people react when they see a 20 year old in a wheelchair and how my doctor prescribed a handicap sticker for me, well for my mom's car or whoever I'm with, because I can't drive or do anything like that. Hun, don't be embarrassed at all. *hugs*
_________________
Whitney Paige

Dysautonomia, Mitral Valve Prolapse, SVT, Fibromyalgia, Non-Epileptic Seizures, Acid Reflux Disease, Chronic Constipation, Insomnia, Sleep Paralysis, and much more!

karli sue · Joined: 26 Oct 2007 Posts: 7

florinef .1 mg (blood pressure)
toprol 6.25 mg (heart rate)
zoloft 75 mg (hypotension and anxiety)
nu-iron 150 - 3 pills - (resolving chronic iron deficient anemia)
levsin .125 mg - 3 times a day - (regulating irregular heart rhythm)
midrin - as needed - (for pains)
melatonin 5 mg (helps insomnia)
biotin 5000 mcg (helps hair falling out and strengthens fingernails)
potassium (florinef makes your potassium low)
monodox 200 mg (for acne, caused by iron pills)
acidophilus (to prevent yeast infection from antibiotic)
one a day women's